We had our neuro check-up today.
We started off with an EEG at 7am. Although they said Emma didn’t need to be sleep deprived for it, she barely woke up to get dressed and slept thru the entire test. This time I could see the test on the screen. That was very frustrating for me. I could see all of the brain activity, but I had no idea what any of the ups and downs meant.
Afterwards, we saw Dr. McCormick. She seemed very pleased with the progress Emma’s made. We increased Emma’s Topamax dosage yesterday to control the seizures she was having. They seemed to have stopped today.
The EEG today was clean. No seizure activity. That’s very good news. Emma spent her waking moments yesterday seizing on and off.
Dr. McCormick is hoping to be able to wean Emma off the Vigabatrin. We will increase Emma’s Topamax dosage each week. If she is doing well on the final dosage, then we will probably wean off the Vigabatrin.
Since Emma’s seizures happen in clusters, Dr. McCormick gave us a perscription for Klonopin. These are disintegrating strips to place on her tongue that should stop the seizures in 30 minutes or so.
We are also getting a chromosomal test done to see if there are any defects on that level that would cause the IS.
Dr. McCormick believes that the IS is symptomatic, not idiopathic. We didn’t ask, but we are wondering if she would classify Emma’s IS as crytopgenic as well. Idiopathic means there are no other associated symptoms, but we don’t know if her delay is due to the root cause, or do to lack of time/energy to develop due to the seizures. Really, only time will how Emma will do.
Emma's Grace
